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Our nationally accredited cystic fibrosis care center is here for you and your child with cystic fibrosis. Our pediatric lung specialists and multidisciplinary team members have promising, proven methods and therapies to help slow the progression of this condition. Through diagnostic and therapeutic management, we’ll help you improve and maintain your child's health.
We offer several cystic fibrosis multispecialty clinics, including:
Our adult pulmonary providers offer an adult cystic fibrosis clinic, so individuals can transition seamlessly and continue to receive lifelong specialized care.
A lot goes into living with cystic fibrosis, sometimes called the salty life, since the condition causes people to have extra salty skin. Hear all about it from our patients and cystic fibrosis care center staff.
Children with cystic fibrosis at times require a “tune up” for pulmonary exacerbations and are admitted to the hospital for intravenous antibiotics. Cystic fibrosis inpatient care involves a multidisciplinary team, including our pediatric pulmonologists, nursing, respiratory therapy, dietitians, social work, child life, physical therapy and other medical specialties as needed. The child and family are considered an important part of the care team and are involved in medical decision making. Parents are welcome to stay at the bedside or onsite at the Renucci Hospitality House.
In accordance with infection control and prevention guidelines, and for the safety of the patient, contact precautions are in place while in the hospital. What this means for patients in the hospital:
Our pediatric pulmonary doctors are experts in cystic fibrosis, and our multidisciplinary consultative clinic is accredited by, and a member of, the national Cystic Fibrosis Foundation. This links our center with the latest knowledge and most current treatments for cystic fibrosis. Our multidisciplinary team of expert physicians, advanced practice providers, nurses, dietitians, respiratory therapists, medical social workers, psychologists, genetic counselors and child life specialists work together every week to review cases, revise care plans and educate our families on the best way to care for themselves.
Until a cure arrives, we explore every treatment option to determine the best plan for your child’s health. As a Therapeutic Development Network Center designated by the Cystic Fibrosis Foundation to do specialty research, we bring state-of-the-art research and new therapies right to our local cystic fibrosis community.
We a proud to have a family advisory council, consisting of several parents whose children receive care from our team. The council shares the patient and family perspective, informing clinic decisions and guiding our team's quality improvement work, with the goal of providing the highest quality care to all patients and families.
Antibiotics may be prescribed to kill bacteria and infection in the lungs.
Inhalers and nebulizers help deliver medication to the lungs to make breathing easier.
A dietitian may be needed to address common cystic fibrosis dietary challenges like burning too many calories or not absorbing enough protein and fat from their diet.
Respiratory therapy includes breathing exercises to get rid of extra mucus, and breathing treatments to deliver medicine and add moisture to the lungs.
A vest connected to a generator causes rapid vibrations that stimulate your child to cough up mucus in the airways of the lungs. Vests work best with kids over the age of four.