For more information
Our pediatric neuroscience center physicians are experienced in the diagnosis and treatment of all forms of neuromuscular disorders, including duchenne muscular dystrophy and spinal muscular atrophy. Extensive diagnostic testing and a team of treatment professionals combine to help children improve muscle and joint function, while slowing muscle deterioration so individuals can live as actively and independently as possible. Our clinic is aligned with the Muscular Dystrophy Association and CureSMA and offers early diagnosis, specialized care and access to promising clinical trials to bring the best possible outcomes. We are currently the only center in Michigan offering access to a worldwide Phase III gene therapy trial for asymptomatic babies diagnosed with spinal muscular atrophy.
I see patients at each visit and ensure they're receiving the most up-to-date treatment.
I ensure patients breathe and sleep well and help patients obtain extra equipment, if needed.
I help make sure patients get proper medications and look for signs of heart problems.
I monitor how patients are growing, making sure they're going through healthy puberty and have healthy bones.
I'm a nurse who is the point person for patients, keeping families involved in care, decisions and next steps.
I do tests to check for changes in function after treatment and assess if patients need adaptive equipment.
I monitor growth of patients, assess their diet and help families make healthy food choices.
I help families navigate insurances, access and other complicated factors.
I meet with families to help explain diagnoses.
Our neuromuscular team strives to provide comprehensive, multidisciplinary cutting edge care in one visit. We know travel can be difficult, particularly for our patients that live further away, and we try to make this as easy as possible. During your visit you will meet with one of our neuromuscular-trained physical therapists to complete standard tests. These help the team determine the care plan. We will help schedule and coordinate your specialty appointments with neurology, pulmonary, endocrine, cardiology and others, to prevent repeat visits. You will also have the opportunity to meet with social work, genetics and our dietitians. Your visit will end with our neuromuscular coordinator to ensure we have the best plan for your child and family.
We currently have a spinal muscular atrophy and Duchenne muscular dystrophy treatment programs. We focus on evidence-based best practice care and offer commercially available and research-based genetic therapies.