Tuberous Sclerosis in Children

Hearing that your child has tuberous sclerosis complex (TSC), a rare genetic condition, is stressful. We can help you understand the illnesses associated with tuberous sclerosis and offer treatment through a TSC Alliance certified clinic managed by our nephrologists, urologists, neurologists and neurosurgeons. Together, we’ll help your child grow and thrive.

Neurocutaneous syndromes like tuberous sclerosis are lifelong disorders that lead to tumors forming in the brain and on vital organs, including the kidneys. Symptoms include kidney cysts, seizures and developmental delays. Kidney problems develop in 70-80 percent of people who have tuberous sclerosis. Medications can help and surgery may be needed if complications develop.


Treatments for Tuberous Sclerosis in Children

It’s natural to feel a little overwhelmed as the parent of a child with tuberous sclerosis. But you're not alone. Our pediatric kidney care team along with other specialists in the TSC clinic are here for you and your child. We're experts in helping children with kidney problems and this specific condition.

We have proven medicines to address typical symptoms of tuberous sclerosis, such as seizures and high blood pressure. If dialysis is needed, we specialize in both types of blood-filtering methods: hemodialysis and peritoneal dialysis. 

If the cyst needs to be removed, we have skilled surgeons and kid-focused sedation services available. We can help your child and your whole family manage this health journey.

Anti-Epileptic Medicine
Medicine may be prescribed to manage seizures, which are a symptom of tuberous sclerosis.

Blood Pressure Medicine
Medicine may be prescribed to manage high blood pressure, which can be caused by kidney disease associated with tuberous sclerosis.

Hemodialysis uses a filtering machine to remove waste and extra fluid from the blood. The procedure is usually done in a dialysis center, three or more times a week.

Kidney Cyst Removal
If a kidney cyst becomes infected, causes pain and doesn’t respond well to antibiotics, it can be surgically removed or drained.

Peritoneal Dialysis
Peritoneal dialysis uses the body's peritoneal membrane beneath the abdominal wall to filter the blood. This treatment can be done continuously, during the day or at night.