The Hypertrophic Cardiomyopathy team is here for you during these unprecedented times. Your providers and nurses are available for phone calls and virtual visits. We can be reached at 616-885-5192 or 616-885-5466. Please click the following link (https://www.spectrumhealth.org/covid19) for the latest community information on COVID-19.
Hypertrophic Cardiomyopathy Program
Hypertrophic Cardiomyopathy (HCM) is the most common inherited heart disorder affecting 1 in 500 individuals. It is a disease in which the heart muscle (myocardium) becomes abnormally thick (hypertrophied). The thickening usually occurs in the ventricular septum which is the area of the heart that separates the right side from the left side of the heart. It may interfere with normal heart function by narrowing the outflow of blood from the heart.
Hypertrophic Cardiomyopathy often goes undiagnosed. Many people with HCM have few, if any, symptoms. Others may experience shortness of breath, dizziness, palpitations or chest discomfort. Some patients experience problems in the heart’s electrical system resulting in life-threatening heart rhythms (arrhythmias).
The Spectrum Health HCM Program utilizes the latest diagnostic techniques in the care of patients and families with Hypertrophic Cardiomyopathy. Our multidisciplinary team includes cardiology specialists (trained in advanced imaging, interventional cardiology, heart failure and electrophysiology), a cardiac surgeon, physician assistant, nurse coordinator, genetic counselor and social worker. This facilitates a comprehensive approach to diagnosis, education and treatment of patients with HCM.
The Spectrum Health HCM team attended the sixth International HCM Summit and had the opportunity for a photo opp with Dr. Eugene Braunwald and Lisa Salberg, Founder and CEO of the HCMA.
HCM Support Group
The Spectrum Health Cardiomyopathy support group showcases our own HCM patient champions who reflect upon their journey on living with HCM. Our goal is for our attendees to have the opportunity to learn and share with patients who have been affected by HCM.
Greg Ikiebe hoped for a new start in the U.S. after fleeing the violence of Nigeria. After landing a job, his next step became clear—he'd need a revamped heart.
After transplant surgery, a woman plans to have her diseased organ plastinated so it can serve as a teaching specimen to help others.
Those of Dutch descent may have specific genetic associations to a heart disorder that can cause sudden death.