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Treatments for Neurofibromatosis in Children

Your Child's Care Begins Here

Though neurofibromatosis does not have a cure, there are many ways to treat the various symptoms and health conditions that can arise from it. There are more advanced treatments being created as well, thanks to ongoing research into this condition. 

Some children will not be affected at all, but for others, treatments can range from blood pressure medicine to surgery to remove tumors to pain medicine to devices such as cochlear implants (which is one of our specialties here at Helen DeVos Children's Hospital). It's rare for a tumor from neurofibromatosis to become cancerous, but if it does, our local advanced approaches to cancer treatment for children will seamlessly be included in your child's ongoing care.

Some children will also face some learning disabilities due to complications from tumors. If this is the case for your child, we also work with your child's school to help them overcome any challenges. It's all part of our approach to medicine for your child: providing comprehensive care.

Treatments We Provide

  • Cochlear Implants

    Sometimes children with neurofibromatosis can suffer hearing loss. We're experts in one of the most promising auditory devices for hearing loss today: cochlear implants.

  • Monitoring

    Even if your child has no noticeable symptoms, it will be important to have regular checks for things like blood pressure changes, signs of early puberty, growth rates and skin conditions. This regular monitoring helps us take care of your child before symptoms become more serious.

  • Pain Medications

    For some children with neurofibromatosis, medication for nerve pain, antidepressants or, rarely, epilepsy, are needed to help manage symptoms.

  • Surgery

    When tumors grow or cause pain or other symptoms, surgery to remove them may be necessary.